Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Tuesday, May 29, 2018

Callie Goes To California

We are at that time for another trip to California. It has been 2.5 years since Callie's last surgery the fenestrated Fontan. Callie has been doing wonderful and we could not be more happy with her progress since the Fontan.

Due to the complexity of her heart condition, her team in California feels it is important for her to be seen by them and have a diagnostic heart cath. We are praying for a great trip with results to match.

We will be leaving in just a few days for our trip, Callie has appointments starting on Monday, June 4th and her heart cath will be Tuesday, June 5th. Will you please join me in praying for her and our family? No matter how many times you make this trip, it never gets easier but we are always determined to make the best out of it! Excited for her team in California to see her and how great she is doing.


Callie has been taking horse back riding lessons since March and is absolutely loving it. She has the best instructor in the world! She just finished up 4th grade with A/B honor roll for the whole year and would have had perfect attendance, if her Mom didn't pull her out during flu season. Wanted to protect her as much as we could. Super proud of our girl !

If you would like to help support our family financially during this next trip, here is the link:

https://www.gofundme.com/callies-2018-heart-trip-to-california




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