It truly has taken Callie 1 full year to recover from her fenestrated Fontan, that surgery was so hard on her body. Her heart was thriving so well on the Glenn and she was already a high risk Fontan patient that the Fontan was pretty much a shock to her body. Thankfully, I pray the worst is behind us and brighter days are ahead. She seems to be adjusting better now to the Fontan and thriving. Her anemia is being treating and her energy has returned :-) At her cardiology appointment this week, she was 48 lbs so she is starting to put weight on...hooray!!! 2017 seems to be off to a good start!
Callie will have a trip to California sometime during the summer, no date has been set at this time. She needs a cath to see if they can close her fenestration, if they cannot close it then she will have to go back in another year. At this point, she is still actively depending on her fenestration so I'm not sure they will be able to close it but we will just have to wait and see.
I pray 2017 holds an abundance of blessings for our family & yours!