Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Thursday, July 28, 2016

Healing & Prayer Requests

Thank you for all the prayers! Callie is doing much better, she was discharged Tuesday evening and we have just been watching her closely for any signs of possible bleeding...very nerve racking! She is on a restricted diet and some new meds to help her stomach lining heal.

She will be starting back to school very soon, so please pray that she will be in tip top shape for when school starts back :-) Cardiology follow up will be this coming week and as always we are hoping for stable and great news.

On another note, please pray for our family - we have some very specific financial needs coming up, among so very other important areas of our lives, please provide for the Lord to provide.

Tuesday, July 26, 2016

Surgery & GI Bleed

Callie had her fistula closed a week ago today, which was where her gtube used to be. The surgery went well but the stressed triggered her vomiting syndrome. Well, on the Thursday she started having like brownish stuff in her vomit which I knew it was probably old blood.

Monday morning she was in extreme pain and had lots of brown stuff in her vomit, in addition,  her bowel movement she had was all darkish as well. So, to the ER we went and she was admitted for observation. They believe she had some type of GI bleed, she threw up this morning and it did not have any abnormal color in it, so that is good. We are waiting to hear what they want to do with her.

Please pray for total healing of her tummy and that there will be no more bleeding. Also, that she will start to feel much, much better and for to get her appetite back. There is always something happening, nothing can ever be simple.