Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Friday, February 12, 2016

10 Days Home

We have been home now for 10 days :-) Callie is doing well but has been very tired. The thinking is that it is still just her body trying to recover from such a big surgery. Due to Callie's complex anatomy,  the Fontan is a little harder for her body to adjust to and may take some time.

Last week, she followed up with her cardiologist and was sent home with a 24 hour holter monitor due to some PACs and PVCs that were occurring in the hospital and have continued to occur.

***Premature atrial contractions (PACs), also known as atrial premature complexes (APC) or atrial premature beats (APB), are a common cardiac dysrhythmia characterized by premature heartbeats originating in theatria. While the sinoatrial node typically regulates the heartbeat during normal sinus rhythm, PACs occur when another region of the atria depolarizes before the sinoatrial node and thus triggers a premature heartbeat.

**(PVCs) are heartbeats that occur earlier than they should. These early beats briefly interrupt the heart's rhythm.

The good news is she is having more PACs then PVCs. But, it also has to be watched closely. So, this coming Wednesday when she sees cardiology she will have to wear another 24 hr. Holter monitor and hopefully the results will show it is happening less frequently.  Callie never had this problem before the Fontan so this is something new since her surgery.

She still has not been cleared to return to school. We are hopeful after her appointment next week she will get the all clear. Please continue to pray for her overall healing and her energy level will start to pick up. At this moment, there is no way she could make it through a whole day of school. Please also pray for her PVCs & PACs that are happening and pray for them to STOP. I would be lying if I said, I wasn't worried about them.




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