Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Thursday, January 14, 2016


Callie will have to go back to the operating room later today due to a huge clot sitting on here left upper lobe of her lung. So they will go and wash it out and that should help get herback on track. 

She had a rollercoaster of night with bleeding, blood pressure and some other things. Today she is better from a bleeding standpoint but her she cannot keep her oxygen saturation up due to the clot compressing her lung.

Keep her in your prayers, that things will start to calm down and she will be able to start her recovery process soon! 

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