Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Saturday, January 16, 2016


Today was thankfully a good day for Callie. Her blood pressure swings are becoming less frequent and overall much more stable. They mainly just wanted her to rest today and tonight due to all what her body has been through the last 2 days. As you can imagine having your chest opened twice in a 24 hrs period is not ideal.

The goal is to hopefully get the breathing tube out tomorrow, as long as her night goes well. Which everything seems to be moving in the right direction, so we should get to see our little firecracker awake tomorrow:-)

Thank you for all your prayers, we are so blessed to have so many praying for our little girl. We are very thankful to all who have donate, we both are out of work and trying to keep up with bills at home plus paying for everything here gets very difficult. 

Please continue to pray for her recovery over the next couple of days, she still has a way to go. 

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