Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Friday, January 15, 2016

Quiet Night

Callie's surgery yesterday was successful in removing the blood clot sitting on her lung, she had some other little areas that were seen to also. They placed a 4th chest tube just in case there was any more blood that accumulated, that would help it drain.

Over night, things were quiet and she was very stable. Her bleeding has stopped, so they.are happy about that and her blood pressure is remaining more stable. Her blood pressure swings are less often, she was having swings of dropping her systolic to 50s all the way to high 130s which can be scary so that seems to be much better. That tends to happen after being on bypass and she was on bypass for almost 3 hrs. Usually, the Fontan is done off of bypass but because of all her calcification it was not possible.

We are just waiting on doctors to round to hear the game plan for the day. Thank you for all the prayers, we know the Lord is hearing them, keep them coming she still has a long way to go.

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