Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Thursday, January 7, 2016

Quick update

Callie was discharged yesterday afternoon and is doing well. Her cath went awesome, she is a candidate for her Fontan - they said her pressures were spot on, which is such a miracle!!!! So, we are waiting to hear from her surgeon if he wants to do the surgery now or bring her back at a later date. I full trust his opinion so whatever he says, is what we will follow.

They were able to also remove her g-tube and Callie is so happy :-) She is tired today and just taking easy, pray for her continued rest and recovery from the cath.

Just wanted to do a quick update, so everyone knew what was going on. I will update once we hear from surgeon.

Thank you for your continue prayers and support. Callie has done so well this trip with her vomiting syndrome and I know all the prayers are being heard :-)

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