Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Friday, January 22, 2016

Post op Day 8

Today was a pretty good day for Callie. Her leg is looking much better from that clot, she is still having some discomfort but nothing like she was.

The lines running in her heart will possibly get pulled tomorrow. If that occurs then she will be free to get out of bed. Hooray!!! She needs to get out of that bed so bad, to get some of that junk in her lungs moving. She does still have 4 chest tubes and on 2 liters of oxygen, hopefully that will be weaned down over the next few days.

Thank you to everyone who is praying for Callie and our family. Prayer works and he hears, she shows us that everyday. Her time left in the hospital is still unknown and our bills do not stop coming, these times can very difficult. Thank you to all who have so generously gave to our family because of this we can be here for Callie and focus on getting her better.

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