Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Wednesday, January 20, 2016

Post op day 7

Callie had a much better day, she actually ate some food today and is looking more like herself. Her blood clot in her leg seems to be getting better, her leg is slowly returning to normal size. She is still requiring high flow oxygen but hopefully she will be on a regular nasal cannula by tomorrow. All 4 chest tubes are in still, please pray the drainage really slows down on these so she can get some out, they are really uncomfortable!

She still is not allowed out of bed due to some lines she has running directly into her heart but hopefully soon those can be removed.

Please continue praying, we are seeing the prayers working :-)

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