Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Tuesday, January 26, 2016

Looking Forward

Callie will hopefully be discharged tomorrow....as long as she has a good day with  no hiccups and her chest xray looks okay in the morning.  Her lungs took a real beating from the hematoma that was sitting on her lung, so it is going to take a good 8 weeks they think for her lungs to fully recovery. But, now that she has her chest tubes out they want to make sure she isn't going to accumulate any fluid. Please pray for things to continue to move in the right direction so she can be discharged tomorrow.

We will not be able to go home right away, they want her to follow up in clinic here on Monday and then probably fly home Tuesday or Wednesday as long as all goes well at the appointment.

She will also have to come back in a few months to have another heart cath to have her fenestration closed. Yep, another trip!!! She will be monitored closely at home to determine the right time for her to return California.


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