Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Saturday, January 9, 2016

Fontan here we come!!!!

Fontan!!! That word was used very little over the past few years. Callie has never really been a candidate for the Fontan and they never were really sure if she ever would be. Well, this little feisty, unique, 1 million 8 year old will be receiving her Fontan on Wednesday!! Yay! We were excited to hear her numbers were perfect to proceed with the surgery but not so excited to have to send her into another surgery. But, it is the light at the end of the tunnel and we just have to keep reminding ourselves this will be great for her.

We briefly spoke with her surgeon, Dr. Hanley, today and let me just say, this man will never know how loved and appreciated he is by Will and I. He has given our daughter what nobody else thought could be done, he is amazing and I thank the Lord for sending such a wonderful man to give my daughter and so many other children the best chance at a normal life. So, back to what he said ;-) Callie's anatomy is extremely unique as he has reminded us many times so any surgery for her is risky but all the variables are spot on for her to have a successful Fontan. After recovery and as long as she continues to do well with no issues, she pretty much will not need to return to California, at least for a good 10 yrs or longer. So, this is what I mean by light at the end of the tunnel!!! She will be repaired and can forget surgeries hopefully for quite some time. There is a chance down the road she will require a transplant but that is a worry for another day...

It is extremely hard on us as parents to send her in for a 10th heart surgery, our hearts break to have to send in her in once again. We have many prayer requests going into this, please pray for a smooth and successful surgery, for an awesome recovery and for our family during this time.

We know she is going to own this surgery! Just look at this feisty,  sassy girl :-)


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