Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.
Yesterday, Callie was moved from the ICU to the step down unit :-) She had a good day yesterday and we are hoping for an even better one today! She will be getting 2 of her 4 chest tubes removed this afternoon! Hooray!!! Very happy about this.
After those 2 chest tubes are removed, we are going to get her up and walking around the unit. She has been getting out of the bed but just to go to bathroom. So, she needs to start doing some real walking.
Please continue to pray for her recovery, specifically for her lungs and that junk she has in there will start to go away.