Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Saturday, January 30, 2016

1 Day at a Time

We have just been relaxing at the Ronald McDonald House since Wednesday. The 1st couple of nights were a little rough, Callie was battling a lot of nausea. I think towards the end of her admission she was starting to get very stressed out due to all the people messing with her. This all plays on her vomiting syndrome and makes it a battle for her. 

Yesterday evening and today have been better but she still complains of not feeling well. She is having a nap right now, hopefully she will wake up feeling much better. We know it will take some time to build back up to her normal self but you wish it would happen much faster....there is nothing easy about about this life. But, all you can do is take it 1 day at a time! 

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