Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Monday, December 28, 2015

1 week till go time

Callie and our family had a wonderful Christmas... Miss Spoiled received more than her fair share of the gifts and was so excited for Christmas Day!

California is a week away, not too excited for that but ready to get it over with. Huge amounts of stress always follow the week before and leading about to go time. Not only will Callie be having her heart cath, she will also be having another small procedure. She is having her feeding tube removed from her stomach and they will stitch it up while she is under anesthesia. While this seems so simple, please pray for no complications. Having dealt with all what we have dealt with the past 8 years, we know no matter how simple the procedure there are still many risks and possible complications.

Please just pray all will go very smoothly and for awesome results :-)

If you feel led to donate to our family, you can simply donate by the button on the right hand side of the page.

Thank you for all your prayers and support!

Saturday, December 12, 2015

Sweet, Sassy girl & her upcoming trip

Well Thanksgiving flew bye, we had wonderful time with family, lots of yummy food and good laughs! Mostly importantly we have so much to be thankful for.

This is one of my most recent favorite pics of Callie, it captures so much of who she is as a little person. She acts so grown up at times for her age and is full of so much sassiness!
Callie is doing awesome! She is super excited for Christmas and has her list all ready, even though she is absolutely scared to death of Santa! LOL! We do not have one picture of her with Santa, she has always been terrified. Figure by the time she is about 10 we will probably be able to get a pic by then ;-)

Now to the not so fun part of my post. Callie has an upcoming trip to California the 1st week of January. She needs a heart cath to assess her current heart status and to see where she stands for her next stage of heart surgery she needs. I am hopeful we will hear good news that she is a candidate for her next stage. But, with that said, I also hope she can wait another 6months at least before she has to go through another heart surgery. Over the next month, please pray she stays healthy and avoids all the germs going around. Sickness is always the biggest fear for her at anytime but even more so when she has an upcoming procedure. Also, please pray for her stress and anxiety, this is a big one for her, especially with her vomiting syndrome. We are not focusing on this upcoming and trip, she knows she is going but we do not talk in depth about it. Her worry should not be this trip, her worries should be remembering her songs for her upcoming Christmas play ;-) Which by the way, she is so excited for!

Our main prayer requests are as follows, if you would like to pray for Callie and our family:
*Callie remains healthy
*heart cath results are positive
*Callie experiences as little stress & anxiety as possible
*funds are provided for upcoming trip

We never like asking for help, it is not an easy thing to do, but we are not millionaires either and these trips get expensive. Just the cost for a hotel is $165/ a night , might seem unbelievable but it is just the cost of staying in that area. We have already been told it is very unlikely we will get into Ronald McDonald House due to the volume of patients right now-which is always the case there. One of our biggest expenses is getting the plane tickets right now. If you feel lead to donate, there are 2 ways, on the right hand side of her blog is a donate button which is through paypal. Or you can go to this link
which is a fundraiser that has been setup for our family to help with expenses.

We are so very grateful to all who have supported and stood by our family over the years. All we want is the very best for Callie, for her to have a full and happy life. Again, please pray keep Callie in your prayers, that this trip will be good and full of positive results! Merry Christmas :-)