So, health wise how is Callie? I can honestly say, probably at her best :-) Her heart is stable and she will see her cardiologist at the end of July. From there I will be scheduling her heart catheterization to go to California for Jan. 2016 which is exactly 2 years out from her Glenn procedure. Dr. Hanley wanted her to have a cath 2 years out to see where she stands. Callie next surgery would be her Fontan, 2 years ago when she had her Glenn, she wasn't a candidate for the Fontan.....but we are praying with time she will become one just like she did with the Glenn. Onto her next battle, the vomiting syndrome.....we seem to have a good handle on that. Callie's last episode was back in January, since then we have been able to get it under control with her meds and a very strict lifestyle. It is tough but it beats watching your child vomit for a week straight. Never take for granted just being able to pick up and go out of town or staying out late for a special event with your child. Callie cannot do things like that and it really sucks at times, she has to be in bed before 8pm, going out of town is a big stressor for her, especially if we all aren't together as a family. Just little things you would not think about are a big deal for her. But, the good news it one day she should outgrow it! I just remind myself this is only temporary ;-)
When you think about 2 years, it seems like a long time but living it, it is like a snap of the fingers! If that makes sense....lol! I say this because this coming Jan. is 2 years since Callie's Glenn, her 9th heart surgery and we will head to California once again. I just can't believe it has been 2 yrs. and once again we will be facing all this all over again. Yes, there is never a day that goes by that I do not worry about her, I am constantly worried. But, being in California really puts it all in your face. Someone, commented to me the other day, that I deserve praise for all we have been through, all the traveling for her surgeries, etc. And this is coming from someone who has a child with CHD and other health complications. Here is how I see it, each and everyone of us has our "normal" or crazy life we live, however, you want to see it ;-) For us, being prepared to travel at a blink of an eye, is our normal/crazy life, I do not even think twice about it anymore... we have adjusted over the past years and it is a journey that God has put us on and there is a reason, it might be tough at times and I always wish that Callie didn't have to go through what she goes through but none of us were promised a life without pain and heartache. But God is with us and he is faithful and good!