Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Saturday, February 22, 2014

A month later...

Exactly 1 month ago this was how we were looking at our sweet girl, just hours after her 9th heart surgery.

           And this is my view today, crazy hair and all :-) 

Callie is doing awesome, her appetite is picking up and soon she will be returning back to school. Looking back on the past month, everything happened so fast and sometimes I think it is better that way. Your mind doesn't have time to go over all the "what if's" of all what surrounds raising a child with CHD. While Callie will be up for another surgery in about 2 yrs. we don't worry about the future. She is healthy and thriving now, which is what ultimately matters!! Having Callie has taught me a whole different way at looking at life and what is most important. We live in the now because nothing is promised in the future. I look at her and am in amazement at her life and what a blessing she is. Callie is my one forever reminder of God's constant provision in her life and ours. Knowing his plan for her is greater than we can ever dream.