Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Sunday, September 29, 2013

Birthday Pics!!








 
Mommy loves you, Callie!!

Sunday, September 15, 2013

One rough weekend:-(

This has been the worst weekend in a while. Callie started vomiting with massive diahrrea late Friday night along with fever:-( The stomach bug has been going around her class for the past 2 weeks, I thought she was doing a great job of avoiding it until now! Saturday morning she seemed better and I thought she was over it since what has been going on in her class was a 24hr. bug but that was short lived, since her body was stressed from that sickness it triggered her vomiting syndrome so now she is on her vomiting kick with no end in sight:-( Please pray for this to stop as quickly as it started! This throws your whole life out of wack, Callie misses school, I miss work and most of all we have to look at our baby miserable.

Our continue prayer is that we can also get her into a smaller class setting in a private school sooner rather than later since sickness triggers her vomiting syndrome, it would be in her best interest to be in the smallest class size to reduce her chances of sickness. The policy for returning to school after illness isn't very strict at her school. So, she has had tons of children in and out of her class sick since school started. We know from experience the smaller class size does tremendously help with illness since in her last school the class size was very small and Callie rarely caught anything there.

On another note, we have people who are continuing to purchase "caringforcallie" bracelets which is awesome and thank you so much! But the question has been what will this money be used for since Callie might not go to California anythime soon?! We usually hold all the money in account so when it is time we have it. But right now, the demand for her to be in a different school setting is so great we will be saving all that in hopes to move her to a private school when the funds provide. And when the time comes to go to California we will have a fundraiser at that point.

Please just pray for body to snap out of this state of vomiting, so we can see this smiling face again.



 
I will also post pics from Callie's Birthday party soon, this pic is actually from her party! Her cake was awesome, birthday post to follow:-)


Wednesday, September 4, 2013

6th Birthday :-)

Look at my sweet 6 year old!! I can't believe it, seems like just yesterday she was this little tiny baby.
Pumpkin, you are everything to your Mommy & Daddy, our world. We couldn't imagine our lives without you. The Lord has blessed us with one extraordinary, beautiful, determined, strong, girl. You never let anything hold you back and stay that way;-) Stay determined, stay hard headed, stay bossy, never back down, Callie you came through so much and the Lord is going to light your way if you let him. Remember what Mommy tells you, "you can always turn to him anytime, anywhere." I can't wait to see all the wonderful things you will achieve as you continue to grow.

HAPPY 6TH BIRTHDAY TUKI!!!! MOMMY & DADDY LOVE YOU!!