Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Thursday, August 29, 2013

Kindergarten Time!!!!!






 

This big girl started her 1st day of Kindergarten almost 2 weeks ago. I can't believe she is in Kindergarten, time sure does get away from us :-( And to think she will be 6 years old this coming Wednesday!! My baby is just growing up way too fast.

She is adjusting to her new school and I pray that things will all fall into place very soon. But, at the current moment we are hitting a few bumps in the road. Callie has 21 other children in her class and it is improving to be not the best situation for Callie. We are finding she isn't being engaged enough and seeking attention. Seeking attention meaning doing things like saying, she is sick all the time and trying to throw up. As most of you know the vomiting syndrome Callie has is brought on my stress and anxiety so we have to very careful not to bring that on. So at times we are walking a fine line. We were very blessed for her to attend a private school last year for Pre-K and that was an awesome setting for Callie and the teachers were phenomenal with her and student to teacher ratio was very low so she received the attention she needed educational and health wise. I fear she is just not going to get the attention she needs this year in a public school setting and it is breaking this Mommy's heart and stressing me out. This little girl has came so far and she deserves the very best . Unfortunately, we are just not in the financial situation to be able to send her to a private school again this year. I pray daily for the Lord to make a way for Callie to attend a school that is better for her and her needs. He knows the desires of my heart for my sweet girl.
 
Trust in the Lord, and do good; dwell in the land and befriend faithfulness. Delight yourself in the Lord, and he will give you the desires of your heart.
Psalm 37:3-4

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