Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Friday, August 9, 2013

Cyclic Vomiting & Dr. Perszyk

A couple of weeks back Callie saw Dr. Perszyk for her Cyclic Vomiting Syndrome. Dr. Perszyk is a Multi-specialty doctor and most people know him for his work in genetics. But, he also specializes in this pain in the behind vomiting syndrome Callie has acquired.

One word about him "AWESOME" :-)  I loved him, he was so good with Callie and had so much insight into this syndrome. He started Callie on a new medication on top of the others she is on for this and we will see how this works. He gave us suggestions on how to deal with her everyday anxiety and stress with school, hospital, etc. He was a wealth on information and I am so thankful I followed my gut and took her to see him. I hoping with his help we can pretty much put this to bay for the most part.

The positive part is she has been doing great all summer long with no cycles. So, I am hoping with his pointers and this new medication this school year will be a successful one! Yes, my BABY will start Kindergarten in a little over a week:-( Time goes by in a blink..... she is excited but her Mama is not so excited. LOL

We will have a follow up appointment with him in October to see how she is doing with starting school and all the adjustments.

Stay tuned for the next update from her appointment with Cardiology and our favorite doctor;-)

Off to get Callie from Dance Camp....

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