Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Monday, August 19, 2013

Cardiology Visit w/our fav doc :-)

Callie had her 3 month check up with Dr. Lacey about 2 weeks ago. Lets just say, "Callie is doing AWESOME!!" Callie has put on 3lbs. which makes her 34lbs and is about 42.5in. Her oxygen remains basically unchanged, which means she is just adjusting well to her shunt and doesn't seem to be out growning it at this moment. Callie is doing so well, that Dr. Lacey doesn't want to see her back for 6 months!!! Which we are going to miss seeing our "FAV" Doctor all the time, but thankful Callie is doing so great.


I will be calling California in the next month or so to give them an update on Miss Bossy Pants!!  Since we are coming up on 1 year since they saw her last and generally they do not like her going over a year without a check up from them. So, we will have to wait and see what they have to say. Callie needs her next surgery which is her Bi-directional Glenn but her surgeon wants her to outgrow the shunt she has before they perform her Glenn, so that is why we are on this waiting game before they will do that surgery. Which will take the break from surgeries and relax in these moments that Callie is doing so great. Praising the Lord all while for all he has done for our little girl and continues to do.

1 comment:

  1. Glad to hear the great news. Calie is a true miracle. I feel blessed that I get to watch her grow. I love her smile. I pray for Callie everyday. Hugs to all. Have a great school year sweet girl <3

    Susanne Hodge