Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Tuesday, July 23, 2013

Where to begin??


Where to begin.....it has been FOREVER since I have posted anything!! I have been slacking:/ Callie had her 1st Dance Recital back in May, she did wonderful and looked gorgeous as always:-) She can't get enough of the dancing, she did a Dance Camp a couple of weeks ago and will do another one in August.




Callie's new "LOVE" is also horses!! Here she is having her 1st horseback riding lesson, that Nana did as a special surprise for her. She was thrilled and would have sat on that horse all day long. Not sure the horse even felt her back there, she is so tiny and light;-) lol



And we can't forget the big graduation, Callie graduation from Pre-K in June. She will started Kindergarten in August and is so exicited she just about can't stand it.







 Health wise Callie is doing great. From Jan till the end of May she battled with recurring sinus infections which eventually started triggering her vomiting syndrome:-/ Which let me just say, "IT WAS MISERABLE!!" She would get a sinus infection then start vomiting. As most of you know, Callie suffers from Cyclic Vomting Syndrome that is brought on by stress and usually she doesn't have any issues with it unless she is in the hospital because being in the hospital is a stressor for her. But, apparently now sinus infections are also a trigger for her body. So, we have her back on preventive medication for the vomiting and have an appointment with a Specialist that deals with this. Since being out of school though she has not had one sinus infection or vomiting spell:-) YAY!!

In August she will see cardiology for a check up before school starts and at that point we will discuss Callie's next trip to CA. Which if she keeps doing this good, with unchanged oxygen levels then we shouldn't have to got till January. So we shall see...will update after her cardiology appoinment in August. Hope everyone is enjoying their summer!!

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