Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Saturday, February 16, 2013

All smiles:)

 
This was at the Ultra Marathon last weekend to raise money for our hospital here. Callie was one of the many faces for this event this year. She was recognized on stage and given a medal with her name engraved on it.
 

                                    Callie on stage receiving her medal :)

       
                   This was Valentines Day at Callie's school.


                                              Callie and her sweet teacher:)

In other news, Callie has 2 teeth coming in behind her baby teeth and those 2 baby teeth are very loose. So, she should be loosing at least one tooth very soon:) Will post pics when that happens;)



 


Saturday, February 2, 2013

All Better:)

I am happy to report Callie is all better and has fully recovered for her fevers, sinus infection, etc. She is going well:) Praise the Lord.

We are continuing to be real careful right now when we are out and about because of flu season but hope in the next few weeks the flu will start to die down some more.

Ready to get back into the swing of things and just enjoy watching Callie grow.

And...........................

IT                                       IS



February Is Heart Awareness Month

Each year, 1 out of every 120 babies in the United States, and 1 million babies worldwide, is born with some type of heart defect, making congenital heart defect the most common type of birth defect in children.

More children die from Congenital Heart Defects than all the childhood cancers combined!

Join me in spreading awareness this month in honor of all the children who have lost their battle with CHD and who are currently fighting CHD. Children like Miss Callie Ann:)


AND...................

8 open heart surgeries


13 heart catherizations


1 gtube surgery


30+ blood transfusions



 
Countless hospital stays, blood draws, IVs, 50+ Echos & EKGs and countless other procedures no child should ever have to experience.
 
 
BUT.......Callie has, our little fighter faces CHD everyday and is a miracle who is proud of each one of her scars.
 
AND...Thanks to this man right here, Callie is a vibrant, hilarious, brave and thriving 5 year old who is currently awaiting her 9th open heart surgery!