Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.
Callie and I arrived late last night in CA, our plane was delayed a few times so we arrived later then anticipated. But, the flight was good and everything went well.
Callie had her pre-op today and all went well. We were in and out pretty fast, since they know Callie and we are no stranger to all this. The docs were so excited to see Callie and thought she looked great. Callie gave them a big hug...if my daughter has to go through all of this, I am glad she is somewhere that cares so much for her. So, now we wait for Monday. Callie is scheduled for 1115 so it will be evening time for those of you on the east coast before Callie is done. I will update as soon as she is done.
What better way to end the day than eating cupcakes for dinner:)