Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.
Merry Christmas, Everyone! Callie has had an awesome Christmas and we all have been blessed beyond measure.
Callie is still struggling to get rid of her cough. They can't seem to clear up her sinus infection, she is on her 5th round of antibiotics in just over a month. We have appointment tomorrow with ENT to discuss her issues more. As of right now, the plan is for her to have sinus surgery in CA and also have her adenoids removed. But, we will know more tomorrow. So, please pray that we can clear this cough up, otherwise we might have to delay her cath which would put us in CA longer and she would have her sinus surgery 1st and then a week later or so have her heart cath.