Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Wednesday, December 26, 2012

Follow up ENT appointment

Callie had her follow up ENT appointment bright and early this morning! BLAH! I hate getting up early. The doc went over her CT results and said her CT did not show anything abnormal and her adenoids were a little enlarged but not by much, he thinks they are a little large just as a result of her having infection for so long up in her sinuses because a few weeks ago they were not enlarged. So, at this point he DOES NOT recommend her having  adenoids out or the sinus surgery, her said all that would be elective surgery that from all the tests the problem does not have anything to do with her sinuses. He also said, that the cough she has does not match the normal so called dry cough you get with a sinus infection. Callie's cough is very wet:/ So, he believes there is something else contributing to all this. But what?? We are not sure yet. They are keeping her on antibiotic permanently till they get to the root of the problem. I am not happy about her staying on antibiotic, it makes me so mad.


With all that, she had allergy testing today. Which will take weeks to get back and tomorrow she has appointment with the Allergy doctor to see if he can offer up any advice on this matter. This is very frustrating and we are so tired of hearing her cough. Please pray for light to be shed on this matter and that we can get her better once and for all. As I said before, this might extend our stay in CA. We still have bracelets for sale to help with all the expenses of the upcoming trip or you can just donate. Every little bit is very helpful and very much appreciated.

1 comment:

  1. Thats so disappointing that they can't find the cause of her cough and clear it up once and for all! I hope she gets off the antibiotics soon and that it doesn't mean any extra time in CA! Continuing to send prayers for her, Jen xxxxx

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