Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.
Callie saw her allergist on Thursday and after a lot of discussion of what she has been going through. He decided to change her antibiotic, this is the 6th round of antibiotic! I am happy to report that after only 24hrs. on this antibiotic her cough was totally GONE:) Praise the Lord! So, the talk was if this does work then we might need to look into putting her on antibioitc prophylactically. In other words, she would get a small dose of antibiotic daily to prevent her from getting these recurring sinus infections. There is also blood work pending that will take about another week to come back, we don't really expect much but the docs wanted this done, to ensure we are covering everything. We are so happy to have all the coughing gone and her appetite is picking back up :)