Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Friday, October 12, 2012

3 months...

I have thought a lot about this post and when I should write about our upcoming trip to California. Only in the past week have I started to tell people that Callie will be returning to California in January. It is hard to believe that it has been almost a year since our last trip. Time seems to just go in a flash. I hate that the good moments seem to go faster than the bad:/ Having a child that is part of the CHD community I am reminded pretty much on a daily basis how precious life is and not to take any moment for granted. And this past week was no different.... Precious 4 yr. old Mia who was born with a Congenital heart defect went to be with the Lord this past week. She had a heart transplant as an infant and was on her Make-A-Wish to Disney when she became very ill and was rushed to the hospital. She went it for a heart cath that determined she was in rejection and suffered cardiac arrest and never recovered. Once again I am reminded how special Callie's life is and in a blink of an eye it all could change. I would be lying to say, that I don't worry about her everyday because I do. I worry when she is at school and what could happen to her. I worry at night when she goes to bed that she might not wake up the next morning. It is hard to say all of that but it is the TRUTH. This is her blog http://mcdonaldfam.blogspot.com/ please take a moment to pray for her sweet family.
For we walk by faith, not by sight. 2 Corinthians 5:7

At this time 3 months from now Callie will be in California. We will leave Jan. 10. She is schedule for a heart cath and then for open heart surgery 2 days later. There is not much I really have to say about it, other than I wish we were getting on a plane to go on vacation instead of this. Callie is aware this is coming up but we don't talk about it much, as I belive there is no reason to keep discussing the matter, she pretty much fully understands her situation as much as any 5 yr. old can and knows she needs another surgery to help her get better:/ Please be in prayer over the next few months for Callie and her health, for the Lord to prepare her sweet body for what is ahead. Also for us as a family and financially.

There has been bracelets made for Callie that we are selling to help raise some funds for her upcoming trip.
I am going to post a way to pay for them through the blog, if you are interested. As for Callie these days, she is doing awesome and I couldn't be any happier with where she is at with her health. Just plain out THANKFUL!! She is enjoying school and loving her dance class she started a couple of months ago. Always has to be the center of attention and laughs all the time. Wouldn't have it any other way:)