Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Sunday, September 16, 2012

Latest & Greatest...

Here are pics of Callie's cake that was done by http://www.loveandsugarkisses.com/ she did an awesome job. I applied Callie through "Icing Smiles Inc." to have a cake created for the birthday. Icing Smiles provides custom celebration cakes for ill children. Callie qualified and they found Love & Sugar Kisses to do the cake. She did an AWESOME cake, it was so pretty.
Thank you so much to Icing Smiles and Love & Sugar Kisses to giving my little girl such a pretty cake for her 5th birthday:) Here are some pics of the birthday girl.
Daddy and his Princess!! Callie had a follow up appointment recently at the pulmonologist and they have concluded that Callie has been experiencing reoccuring sinus infections which has been causing her onging cough. Who would have guessed!!! All her blood work came back fine except for her tetanus antibodies, so she had to go for a tetanus shot and she will haveto do repeat blood work in a month to make sure her tetanus antibodies are holding steady. Which I'm sure they will. She has a cardiology appt. this Wednesday and her 5yr. check up the following week. Thanks for checking in:)

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