Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.
Look at my baby! At our appointment last week at cardiology, I walked in and glanced up at the wall and thought to myself, "man, that little girl looks familiar!" HAHA! Looking back a second time, realizing it was Callie;) She had some pics taken by Wolfsons back in August for an event coming up called, The Ultra Marathon. So, I guess they decided to use her picture for this. Was very flattered to see her up on that wall, made my heart smile:) So, on to the cardilogy visit......Callie's appointment was AWESOME. She gained 2 lbs. in 3mths and gre 2in which is wonderful! She is now 29lbs. and 40in., such a little toothpick. Her oxygen was great and her echo remains unchanged. Her next appointment will be in Decemeber which will be our last appointment before we head back to California in January. (That will be another post to come about our upcoming trip) Her 5yr. check up went just the same, everyone is beyond pleased with how well she is doing!
I will leave you with this pic, this is a pic at 1yr. and then at 5yr. Love my babygirl more than anything in this world!