Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Wednesday, September 26, 2012


Look at my baby! At our appointment last week at cardiology, I walked in and glanced up at the wall and thought to myself, "man, that little girl looks familiar!" HAHA! Looking back a second time, realizing it was Callie;) She had some pics taken by Wolfsons back in August for an event coming up called, The Ultra Marathon. So, I guess they decided to use her picture for this. Was very flattered to see her up on that wall, made my heart smile:) So, on to the cardilogy visit......Callie's appointment was AWESOME. She gained 2 lbs. in 3mths and gre 2in which is wonderful! She is now 29lbs. and 40in., such a little toothpick. Her oxygen was great and her echo remains unchanged. Her next appointment will be in Decemeber which will be our last appointment before we head back to California in January. (That will be another post to come about our upcoming trip) Her 5yr. check up went just the same, everyone is beyond pleased with how well she is doing! I will leave you with this pic, this is a pic at 1yr. and then at 5yr. Love my babygirl more than anything in this world!

Sunday, September 16, 2012

Latest & Greatest...

Here are pics of Callie's cake that was done by http://www.loveandsugarkisses.com/ she did an awesome job. I applied Callie through "Icing Smiles Inc." to have a cake created for the birthday. Icing Smiles provides custom celebration cakes for ill children. Callie qualified and they found Love & Sugar Kisses to do the cake. She did an AWESOME cake, it was so pretty.
Thank you so much to Icing Smiles and Love & Sugar Kisses to giving my little girl such a pretty cake for her 5th birthday:) Here are some pics of the birthday girl.
Daddy and his Princess!! Callie had a follow up appointment recently at the pulmonologist and they have concluded that Callie has been experiencing reoccuring sinus infections which has been causing her onging cough. Who would have guessed!!! All her blood work came back fine except for her tetanus antibodies, so she had to go for a tetanus shot and she will haveto do repeat blood work in a month to make sure her tetanus antibodies are holding steady. Which I'm sure they will. She has a cardiology appt. this Wednesday and her 5yr. check up the following week. Thanks for checking in:)

Tuesday, September 4, 2012

5 years old!!!

This silly, beautiful, strong, hard-headed, little girl turned 5 years old today! I still can't believe it has been 5 years since we were looking at this miracle laying in the NICU at Baptist wondering what battles were ahead of her. I can say today, Callie has been through more than most grown adults but she has been so strong and fearless through it all. For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11
Mommy and Daddy love you sweet girl! Always remember through everything hard and great the Lord is with you and if you just trust him, he will take you some great places:) Happy 5th Birthday, Callie Ann Carver!!!