Learn About Callie's Journey with CHD

My photo
Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Wednesday, August 1, 2012


Well, Callie had her appointment with the pulmonologist yesterday and to start with, I really, really liked the doctor. He had great bed side manner and listen to everything I had to say. He repeated a chest xray on Callie and also did a xray of her sinuses. The xray showed that her sinuses looked a lot larger than they should be which would indicate a sinus infection but she doesn't have any of the classic signs of a sinus infection...so he was a little thrown off by that. We talked about her espisode back in May when her white blood cell count was so high but chest xray looked great and they couldn't find anything in her bloodwork. He said, usually sinus infections don't elevate your WBC count that much, maybe a little but not as high as hers' was! In the end, he ordered a whole bunch of bloodwork on her. Retesting her WBC count, testing for different immune deficiencies (which I doubt she has b/c she would be sick all the time & shes not), also did an antibody test and various other tests. In Addition, he order the panel for allergy testing. He wants to cover all the bases to ensure we aren't missing anything which I appreciate. We completed all the bloodwork yesterday except for the allergy testing, it was just so much blood at one time for her. So, we will go back later this week to do the allergy testing. They are putting her back on antibiotics and treating her like she has a sinus infection for this current moment. We will repeat another xray of her sinuses in 6weeks. And it will take about 7 days to get the results of her bloodwork. Thanks for checking in and look forward to upcoming posts about Callie starting VPK and the 1 year anniversary of her 6th,7th & 8th heart surgeries!!

1 comment:

  1. The doctor sounds wonderfully thorough! So happy to hear that you liked him - that can be hard to find, especially when you have to trust them with your precious cargo! :-) Fingers crossed they have some results for you soon, and they can stop it from reoccuring. Kisses to sweet Callie from us, xoxoxoxox