Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Friday, August 3, 2012

1 year....

1 year ago today, I was looking at my baby like this.....
And today, thank the Lord, I get to see this smiling face....
Callie had her 6th heart surgery a year ago today and then that weekend had her 7th and 8th heart surgeries that were only 12 hrs. apart from one another. Those were the most terrifying moments of my life to date and I can remember those feelings all too well. I was so scared for her life and crying out to God not to take my baby yet. In the moment of all the chaos it is hard just to say, " Lord I lay it all at your feet" but over the years of this rollercoaster we've been living on with Callie, I've quickly learned that is the only way to live. I am so thankful for the sovereignty of our God knowing he has everything in his hands. "For I know the plans I have for you, "declares the LORD, "plans to prosper you and not harm you, plans to give you hope and a future." Jeremiah 29:11

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