Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.
We have been very thankful for enjoying this summer at home, just hanging out and relaxing as a family. Callie has been enjoying school and feel blessed she has such loving teachers that we can trust our little girl with.
Playing w/friends at school!
Callie on the 4th of July
Here lately we have been working real hard on Callie eating and trying to backoff on the feeding pump, so that she feels like eating more during the day. So far, she has been doing very well. Here is Callie showing off her plate.....we tell her an empty plate is a "happy plate":)
This month marks 6mths. since Callie's last trip to California. Which means we only have 6mths till we haveto return, that is if Callie remains stable. We are hopeful that she will make it to January but at the sametime we know it is a possibilty that we will return sooner. One of those harsh realities of our lives that we have just learn to accept.
Callie is becoming rather good at writing her name and her speech continues to improve. Getting so big;)Her new thing lately is chewing gum, not something I am thrilled about....but she definitely loves, she thinks it makes her a "BIG GIRL";)
At the beginning of July she had another mysterious cough appeared. That once again, she went on a 2 week course of antibiotic for and by the end of the 2nd week it finally disappeared. She had no other symptoms of being sick, just a nasty cough. So, we aren't sure why she keeps getting this cough. But, we are looking into consulting a pulmonologist. Callie's lungs have been through a descent about of stress over the past 4yrs. with surgery after surgery, so we know her lungs are not 100%....so a pulmonologist might shed some light on this crazy, recurring cough.