Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Wednesday, July 25, 2012

Here we go..........

I feel like I keep living the same dream over and over:/ Callie just got off antibiotics a week ago this past Sunday and Sunday she started with her dry, annoying cough and as of today, it is once again her horrible, mysterious cough. She doesn't have any other symptoms than being sick just this cough. This cough has been coming and going for a year now and everytime they just stick her on antibiotics to get rid off. So, about a month ago I sat down and charted every single time that I had documented about this cough and that's when I really realized how long this has been coming and going. Long story short, talked with her cardiologist and we both agreed that we think Callie should see a pulmonologist. Been calling since yesterday at 130pm to get her in to be seen while she has her symptoms and before she has to be put on antibiotic again. So the pulmonologist can see this cough in action! But IT IS MISSION IMPOSSIBLE!!! :/ Will be harassing them tomorrow, bright and early at 8am:) So, that is what has been going on this week so far! Beyond frustrated, just wanna cry! Please be in prayer that this is nothing serious. If anyone has any suggestions or their child has experienced anything like this, I would love to hear from you. I will update as soon as I hear anything from docs.


  1. Saying lots of prayers you get an appointment asap so you can get that cough checked out.

  2. So sorry Callie is going through this :( can the cardiologist call the pulm and see if things can get moving that way? Praying for you all. Xoxo