Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Wednesday, June 20, 2012

Cardiology Appointment

Callie had her check up with Cardiology today, it has been 3 months since her last check up. Which seems like forever, when we are used to going at least once a month if not more!! Her vitals today were: Weight: 27.4lbs. Oxygen Saturation: 79-81% Height: 39in. The praise is she put on pretty much a pound since the last time she was seen!! Hooray:) Her oxygen may have dropped just a bit. But, at this time not enough to be concerned about. Each visit I am reminded what Callie is faced with.....not that I ever forget in the slightest bit but I like to think we do a pretty good job of raising Callie as she can do anything any other child can do and let her enjoy being a kid. I believe that is very important. But, I am reminded today that we are on borrowed time....no matter how great she looks and is doing. She still as a pretty severe narrowing in her aorta, that will always be concerning. And sometime in the next coming months she will NEED another surgery! I try my hardest to rest it in God's hands, in knowing his timing is perfect:) But, I am only human and still stress about it everyday and worry about her...she my sweet baby girl! And did I mention she is growing up WAY TOO FAST;)