Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Tuesday, April 24, 2012

A little bit of everything......

Callie came down with a cold over the weekend and as a result woke up Monday morning with a horrible cough:( Which always happens when she gets a cold because any cold she gets goes straight to her lungs since they are not 100% from everything they have been through. So, the doc prescribed her some antibiotic after hearing a few crackles in her lungs! Today, she seems much better...the cough still sounds pretty bad but usually that takes some time. Thank you everyone who has been praying for her:) On Saturday, we attended the Heart Carnival put on by Wolfsons and University of Florida Peditric Cardiology which is for all heart patients. This is the 1st year we have actually been able to attend, we've always either been in California or Callie wasn't well enough to attend. So, I was very thankful to be able to be part of it this year! Here is an interesting fact, a surgeon that practice under Dr. Hanley at Lucile Packard actually moved here last July to be part of the staff here....this is very exiciting for Pediatric Cardiology here and I am very happy for them. While Callie does not benefit from this awesome man, I pray that others will benefit tremendously from the "AWESOME TEACHER" he had in California!!! And forgive me, I do not know the new surgeons' name! I am horrible with names:( But, he is super nice and I enjoyed meeting him on Saturday! Callie is enjoying going to school everyday, these past couple of days she has been home sick she has been begging to go back to school. It is so nice for her to be able to enjoy normal life as a kid and not having to worry with the hospital and surgery. Very thankful for these moments! I think often of all the little ones in the hospital right now dealing with surgery and procedures, etc and it makes me that much more thankful that Callie is doing as well as she is. April marks the anniversary of Callies' 5th heart surgery which was 2 years ago. Blows my mind!!!! God is good:) Here is some pics we had taken for Easter and Callie's 4yr pics ( a little behind on the 4yr. pics since she will be 5 in just a few short months but better late than never!!)
And I almost forgot, I have a praise....for the past couple of months Callie and I have prayed nightly for sweet Lucas who underwent a bone marrow transplant. He was discharged yesterday, he still has to visit the hospital daily but at least he has the nights with his Mommy, Daddy and sweet baby brother. Yay, Lucas:) We love you.

Saturday, April 14, 2012


Hope everyone had a nice Easter with family and friends. Callie had a blast coloring eggs and hunting for them. We really didn't go anywhere because I came down sick Saturday and felt horrible by Sunday. The Easter Bunny was very good to Callie this year;)

Coloring eggs...she had blue hands the rest of the day;)

Such a happy girl waiting to attack the yard to find those eggs!

Look at all those eggs:)

Funny Face:)

"He is risen from the dead, just as he said would happen"
Matthew 28:6