Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Saturday, February 18, 2012

A Glimpse At Winter.......


Callie loves this little dolphin, Miss Winter. She has watched, "Dolphin Tale" probably over a 100 times since she received the movie as a Christmas gift. Thanks to "Dreams Come True" Callie was able to go visit her at Clearwater Marine Aquarium.

Callie pointing at Winter.

Holding Winters' tail


We were hoping Callie would get to meet Winter up close but apparently you cannot do this:( Never the less, I was happy to be given the opportunity to take her see her favorite dolphin:)

One last pic....

Wednesday, February 1, 2012

Living In A Dream With CHD......

The title for this post might not make sense to most but to those who have a child with CHD, I'm sure it will make sense as this post continues. At this moment my child has one of the rarest, most complex heart condition there is, her furture is uncertain but at this very moment she is doing FANTASTIC!! For the first time in a long time, I feel relieved, almost like this isn't real no trips for 1 YEAR but at the same time you never forget her severe things really are. (hence my title for this post)

February 1st marks CHD Awareness month...WHO DO YOU WHERE RED FOR???

1in100 babies are born with a Congenital Heart Defect & CHD kills more kids than all pediatric cancers combined yet gets 1/10th funding. Help spread awareness!

Like most, I had never even heard about Congenital Heart Defects before I had Callie and knew very little about the human heart. Today, I know more than I could ever imagined. Share Callie's story with someone this month or if you know another child with CHD share there story. Raise awareness, get the word out, help give these kids the fighting chance they deserve.

I AM A CHD SURVIVOR!!

Callie her follow up with cardiology here yesterday and everything looks good! She is just over 38 inches tall and still 25lbs. my string bean;) Thanks for checking in and remember FEBRUARY IS CHD AWARENESS MONTH:)