Learn About Callie's Journey with CHD

My photo
Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Wednesday, January 18, 2012

The waiting game....

We thought we would have an answer from Callie's surgeon, Dr. Hanley by now...but no such luck!!! We were very eager to get out of the hospital today after a sleepless night. Callie had to have a lung perfusion scan before she could get discharged, it took forever for them to come get her for the scan so Callie wasn't discharged until 415pm!!! Better than another night in the hospital.

She is exhausted, feel asleep after dinner and has been asleep since. They did switch Callie's blood pressure medicine to every 12hrs!! YAY! So, no more every 6hrs:)

This is the plan as this afternoon, we are hanging around and keeping her surgery date of Monday for now. When Dr. Hanley finally does get all the info from Callie's cath (which from what we are told won't be till Sat. or Sun) we will hear from someone at that point, as to what he's exact answer is. The cardiac team did discuss her in conference this morning but without Dr. Hanley there it is all irrelevant. We will more than likely find out Sunday night the for sure answer!

Please pray the Lord gives Dr. Hanley the knowledge he needs to make the best possible decision for Callie. Will update as soon as we find out the answer!

1 comment: