Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Saturday, January 14, 2012

Quick Update

Pre-op went well today. In fact, Callie did so great at the end she was rewarded with a babydoll by the echo tech:) She is such a trooper and growing up so fast. All Callie had to have today was an echo and ekg. They decided not to do blood work because Callie's veins are shot and it wasn't necessary to get a chest xray. So, today was pretty easy.

After the echo and ekg we were given a room to talk with the physicians assistant, Heidi. She had saved Callie a yummy cupcake from "Sprinkles"! She has been seeing Callie since we started coming here back in 2007. It may suck to be here but its nice to be welcomed by such wonderful, caring people!

Callie is all set for Tuesday, we haveto be at the hospital at 8am and her cath is scheduled for 930am.

We are going to relax and enjoy the weekend with Callie:) Hope everyone has a great weekend!

Thanks for checking in.


  1. Sweet girl. Praying for you guys. If you have a moment please let us know how we can help. Love to you all! Terra