Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Sunday, December 25, 2011

Merry Christmas 2011

Merry Christmas everyone! Hope everyone enjoyed the day with family and friends, remembering the reason for the season:)
Callie and her new bike!

We can't say enough how thankful we are to be at home with Callie, watching her enjoy this day! Please, take a minute to pray for all the children in the hospital who cannot be at home on this Christmas.

“For to us a child is born, to us a son is given, and the government will be on his shoulders. And he will be called Wonderful Counselor, Mighty God, Everlasting Father, Prince of Peace” Isaiah 9:6

One last pic of Callie and her drums, which was a gift from Grandma!!!! My ears are not liking it at all, I think I have a permament headache;)But, Callie is loving it and thats all that matters!

Wednesday, December 21, 2011

Callie had her routine check up with the Cardiologist on Monday and everything went well.
As you can tell from the pic above she was happy to be there:) She enjoys are visits here, loves seeing everyone and her favorite is begging them for lollipops:)

She weighed in at 25lbs and 38in. Oxygen saturation was between 79-82% which is just fine for Callie. Her cardiologist said, her narrowing in her aorta actually looks a little better, which was good to hear. And overall, she seems to be in the best point with her heart to hopefully go forward with her Glenn in January! All smiles on that one and continue to pray that this cath she will have before her surgery, will show great things in that little heart of hers!

Callie is very exicited for Christmas and she can't wait to get those gifts!! She also has been enjoying reading about baby Jesus and talks about him non-stop and how he was born on Christmas:)

The above pic is Callie playing her new fav game "Monkey Dunk" that she received as a gift! As you can tell, she loves it. We are enjoying this time of year with Miss Callie and can't wait to see her open her gifts on Christmas morning!

I want to extend a huge, thank you to everyone who has opened their hearts to our family and for all your generosity! Words do not describe how touched we are by all of you.

Merry Christmas to everyone!