Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Thursday, October 13, 2011

Meet The New Cleaning Lady!!!

I employed some cleaning help this past week, isn't she adorable?
She cleans better than some adults I know!! Even if the vacuum is a big as her;)

Callie is over her cycle!! YAY:) I think we are starting to get a handle on these cycles, praise the Lord. She has had more good days this month and her last cycle was only 4 1/2 days. Thank you Victoria, for being someone I could talk to about this and for recommending the Neurontin.

Her cardiology appt. went well, except for the fact my 4yr. old weighed 22lbs.!! Yikes! But, how can anyone keep weight on puking 20 times an hr. Now we work to put the weight back on, so far she is doing an excellent job of that. Filling her tummy with pizza, ice cream and all the things we shouldn't eat but Callie most certainly should;) Callie will not have her MRI tomorrow because she needs anesthesia for it and well she isn't at the stablest point with her heart so, Dr. Lacey doesn't feel comfortably putting her under. Which I totally respect that and grateful she is being so cautious will my baby! Callie will probably have this test done in California when she has her heart cath.

Thanks for checking in!

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