Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Tuesday, August 9, 2011

Urgent Update

Callie has had a lot going on since Sunday morning. Will and I received a phone call around 6am Sunday morning to head to the ICU ASAP. Callie around 4am had started to pour blood out of 1 of her chest tubes and out of her incision. She was taken back to the OR where Dr. Hanely did emergency surgery. A long story short, Callie's chest tube ripped her Aorta!!! From what I was told, it is a very freak accident. But, I believe the chest tube made its way up there near the aorta due to all the movement she was doing when they couldn't get her sedated. So, she was stablized and brought back to the ICU. Dr. Hanley stitched the tear and all was well.

Our nightmare occured again later Sunday night at 930pm. The same thing occured she started bleeding out, she was opened up bedside by Dr. Hanley where he explored the problem. It was then discovered she had another tear in her aorta! He believes from all of her surgeries, scar tissue and then the chest tube incident it weakend the aorta tissue and thinned it out. So, instead of stitching this tear, he put a patch over her aorta to prevent this from happening again!

As of right now they have her paralyzed as a percaution to make sure no more bleeding occurs. As soon as they know that patch is set, then they will allow her to start moving again! She is having a few issues with her blood pressure, so she has 2 meds controlling that. Overall, things as far as meds and such have not change since my last post.

This has been the hardest and scariest past couple of days I have ever been through in my life and I feel so helpless.

Please say a prayer for Callie, that the Lord will heal her and there will be no repercussions from all the tramua her little body has had to endure.

Thank you Lord for being with our little girl through all of this and blessing us with such an amazing surgeon! We love you Dr. Hanley!


  1. Will & Sarah-
    I am soooo sorry to hear about Callie's last few days. My heart sunk as I read the update. The kids, Rod & I have been praying for Callie every night but now know more specifically how to pray. I am thankful she was well tended to and that Dr. Hanley handled the situation as scary as it was. Thank you for updating us. Please give Callie a kiss from us!

    The Williams

  2. Our hearts are hurting with yours. We are praying so hard for you guys. We are so sorry.
    the Nelsons

  3. Oh sweet friends, my heart hurts with you as well. We are praying and also have sent out many prayer request. Remember you are not alone many love you, most importantly God. He may not feel present right now, but just know he never leaves your side. Sending so much love, The Chez Family

  4. I'm friends of the Chez's and wanted you to know I'm praying for your precious Callie. I saw the update on Terra's Facebook and read your updates. I pray you feel God's loving arms around you all and that by His mighty power Callie will continue to heal. May His strength continue to sustain you and give you hope and peace. In Him, Trisha Graves

  5. Praying for your family from Wisconsin.

  6. That sounds so extremely scary for anyone to go through, especially such a small girl. I can imagine how worried you all felt. It's wonderful that you're strong enough to write about this and that you're kind enough to share info with others. I know sharing gives you strength and others can be very supportive. Sending you prayers.