Learn About Callie's Journey with CHD

My photo
Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Wednesday, August 3, 2011

Surgery Completed!!!!

Hi Everyone! Callie is done, praise the lord. She did awesome, the Lord was with her today and we are so thankful to each one of you who prayed for our little girl. Callie handled the bypass machine just fine and everything was done successfully without any complications.

Dr. Hanley removed her 2 central shunts and replaced them with one main shunt. He removed her lower left pulmonary vein away from her aorta and also removed the stent from her upper left pulmonary vein. So, both left pulmonary veins have awesome blood flow now. He is confident this upper vein will stay open now and hopefully there will be no further complications with it! Fingers and toes crossed=)

The objective of this surgery was to help get her pressures in a range that will be safe for her to have her Glenn. So, we will return in 6mths for a heart cath and if her pressures have lowered then and everything looks good then at that point she will have her 7th open heart surgery The Glenn!

I am so relieved and grateful right now=)

I will update after we see her!


  1. Yay! So glad to hear it went so well.

  2. Sarah we are so happy and relieved for all of you! That Dr. Hanley knows his stuff :-) We'll keep sending all that positive energy to Miss Callie during her recovery and will stay tuned for updates - hugs to everyone!! Jen, Greg, Jack and Katie xoxoxox