Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Tuesday, August 16, 2011

Prayers Please...

Things have been such a rollercoaster this trip. Will and I are so physically and mentally exhausted. We feel so defeated and helpless when it comes to Callie. Poor baby has been through so much and its just not fair.

So with saying all that, Callie has to go in for a heart cath at around 1pm California time to see if they can put a stent in a narrowing she apparently has that is causing her high blood pressure. This is really an odd situation because her blood pressure is only high in one arm and all other extremities register a normal bp. This is because where the narrowing is, I haven't been able to talk with Dr. Hanley just yet so its a little hard to explain. Dr. Peng will be doing her cath and she is going to check out everything. This cath is consider more risky because she is so fresh out of surgery so please pray that everything goes GREAT!

Callie is a little more talkative this morning...with that said, they looked at her vocal cord yesterday and it is paralayzed:( I'm praying and thinking only positive thoughts that it will only be temporary.

All I ask, that everyone prays for my baby and everything goes well with no complications and we get positive news.

2 comments:

  1. We're praying, praying, praying. She's going to do amazing Sarah. xoxoxoxoxoxoxoxox

    ReplyDelete
  2. will say some prayers for her

    ReplyDelete