Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Saturday, August 6, 2011

Post Op: Day 3

Not much happening with Miss Callie. She has been a real challenge to keep sedated, but right now she is resting very nicely. If they allow her to wake up she is not the greatest patient:/ She basically tries to keep up and walk out, which is kinda hard to do when your hooked up to a ventilator! HAHA! She is a mess, I wouldn't have it any other way =)

The hope was to extubate her tomorrow but not too sure if they is going to happen, now. Her xray and oxygen saturation looks great, breath sounds are great but she is still having just a little trouble which the docs tend to think it is because of all the extensive work that was done on her heart. Basically, she just might require another day or so of rest. Which I am completely happy with....we will just continue to take one day at a time.

I am so amazed when I look at her, her strength and determination is unbelievable! Looking at Callie during these times and all she is faced with, she really reminds me how powerful our God is and nothing is impossible. Having to watch her lay there kills me, I want so badly to hear her sweet little voice. But.....on the other hand she would probably be yelling at me so it might be a good thing she is knocked out right now!! LOL Because man, that child has one heck of a temper and a hard head=)

I had a doctor tell me today, how exicited Dr. Hanley was when he finished Callie's surgery. This is such a HUGE step in the right direction for Callie and many were not sure if she would ever get this far. She is not out of the woods yet but we will continue to pray and take one day at a time. I think I have prayed every night since the day she was born for God to perform a miracle and heal her. Well, I think I'm living that miracle!!

Thank you Dr. Hanley, for all you have done for Callie and continue to do for her. We love you!!!!

Jesus looked at them and said, “With man this is impossible, but with God all things are possible.”
Matthew 19:26

1 comment:

  1. When I asked Lucas what he wanted to do today, he said, "Go see Callie and Sarah!" I am so glad to hear that she is healing. Your posts are so genuine and it is great to be able to keep up with how Miss Callie is doing. We will keep praying for a smooth recovery for her!