Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Friday, August 5, 2011

Post Op: Day 1

Callie had a very uneventful day, she has remained very stable! Today was all about keeping her comfortable so she can continue to rest and heal.

We did find out on rounds this morning that she might possibly have left vocal cord paralysis from her heart surgery =( Your vocal cords are in such close proximity to your heart, that they can be in danger during any heart surgery. So, it was reported from Dr. Hanley to keep an eye on the left vocal cord after she is extubated because apparently he was very close to it and feels it could be damaged! This makes me sad but I know it may turn out to be nothing! And it also could only be temporary which is what I pray for. Her 2nd heart surgery at 8mths old she suffered from right vocal cord paralysis and it turned out to be temporary and she recovered just fine from. We won't know more until she is extubated and can evaulate the situation. But, please pray with me that it turns out to very minor and temporary.

I would like to say, thank you to Lisa a friend of one of our close heart families, The Williams Family. The have an adorable little girl Reagan that I have posted about before and we met here in CA at RMH way back when. Long story short, Lisa brought Will and I a huge amount of groceries today and we are so grateful. Thank you so much Lisa, it means a great deal=)

So, it was a good day for Miss Callie and I am off to bed to get some much needed rest.

God is Good!

1 comment:

  1. We're so thankful to hear it was an uneventful day, and that she is being kept comfortable to rest and heal. Prayers are going out for her, that her vocal cords are just fine, and the rest of her recovery stays uneventful! You have such strength Sarah, it's obvious where Miss C gets it from :-)

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