Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Thursday, August 11, 2011

A Good Day

Callie had a quiet, awesome day:) No major changes for Callie today...the docs are taking everything very slow. They were able to come off of her Morphine drip a bit and come down on her ventilator settings some. They are working towards extubating her very soon. There was talk of possibily tomorrow but I'm thinking it might be more like Friday. We will just haveto wait and see........baby steps!

I am very thankful for this day, she was opening her eyes some and answering questions by shaking her head yes or no. Its nice to be able to communicate with my baby some, I miss her loud, silly self. So, today was good:)

Thank you everyone for your continued prayers and support.


  1. So, so relieved to hear that yesterday was a good day - prayers sent that today is even better :-) Hugs, Jen, Greg, Jack and Katie xoxoxox

  2. Found your blog on sweet Callie through a prayer request. Having two "heart" (HLHS) grandkids, I can relate in someway to the surgery drama. I have added my prayers for your beautiful daughter. Replacing fear with faith is so difficult. I think you have already seen the miracles of faith in her surviving complications of her surgery. Hopefully, you will see improvements every day.