Callie was discharged yesterday...Hooray! I was so happy to get her out of there and I know she is just as happy. Callie is doing well, she is very sleepy and still trying to get her strength back. Right now, she is sleeping the majority of the time. I know it feels good to be able to sleep and not have someone bugging you every 2 seconds for blood or to take your bp.
Her bp remains under control with 2 bp meds. One every 12hrs and the other every 6hrs. She was weaned off of oxygen but seems to be requiring some oxygen when she sleeps. Once her body recovers and adjusts to the new central shunt, she should level out her oxygen saturations and not desat when sleeping.
She doesn't want to eat and has been having a time with tummy issues. Poor thing! I'm positive it is from all the medications she is on making her feel so yucky. If anyone can lend some advice to any over the counter meds for upset tummies in kids, that is okay to take with a butt load of medication....please let me know.
Callie has blood work and a chest xray on Monday at LPCH, then on Wednesday she has a follow up appt. w/Cardiology. Usually, we do not follow up in Clinic here but since Callie has had so many major events happen this hospitalization, I did not feel comfortable flying home without them checking her out one last time! Then, hope to fly home a few days after:)
Thank you to everyone for all of your emotional support, generosity and prayers during this trip, we are so grateful! God has blessed us with some pretty amazing family and friends, not sure what we would do without all of you! Big hugs to all.