Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Saturday, August 27, 2011

Free at Last:)

Callie was discharged yesterday...Hooray! I was so happy to get her out of there and I know she is just as happy. Callie is doing well, she is very sleepy and still trying to get her strength back. Right now, she is sleeping the majority of the time. I know it feels good to be able to sleep and not have someone bugging you every 2 seconds for blood or to take your bp.

Her bp remains under control with 2 bp meds. One every 12hrs and the other every 6hrs. She was weaned off of oxygen but seems to be requiring some oxygen when she sleeps. Once her body recovers and adjusts to the new central shunt, she should level out her oxygen saturations and not desat when sleeping.

She doesn't want to eat and has been having a time with tummy issues. Poor thing! I'm positive it is from all the medications she is on making her feel so yucky. If anyone can lend some advice to any over the counter meds for upset tummies in kids, that is okay to take with a butt load of medication....please let me know.

Callie has blood work and a chest xray on Monday at LPCH, then on Wednesday she has a follow up appt. w/Cardiology. Usually, we do not follow up in Clinic here but since Callie has had so many major events happen this hospitalization, I did not feel comfortable flying home without them checking her out one last time! Then, hope to fly home a few days after:)

Thank you to everyone for all of your emotional support, generosity and prayers during this trip, we are so grateful! God has blessed us with some pretty amazing family and friends, not sure what we would do without all of you! Big hugs to all.

2 comments:

  1. Praying for a restful calm next few days. So glad to hear she was discharged. Wow, that was a surprise!! Hope all her appts. go well this week so you guys can get home. Maybe we'll see you out there next time. I think we are shooting for February for Reagan's next cath.
    Take care and thanks for update!!

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  2. Yay! What great news that she was discharged!! Prayers sent that all her follow-up appts go well, and she can be home in time for her birthday :-) Give her a kiss from us!

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