Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Saturday, August 13, 2011

Extubated :)

My little trooper was extubated today:) She did well, just very sleepy and has been resting well. Callie is on high flow oxygen for now and will be weaned to regular nasal cannula in the next few days. Her blood pressure has been a little hard to control and they aren't exactly sure why. Should get more clarification on that tomorrow, thinking it probably has something to do with her surgeries on Sunday. Her neck is also swollen which is moving don her arm, that is most likely due to her central line in her arm. Again, we will be talking about that tomorrow as well.

Overall, she is doing great and has overcome Sunday's events incredibly well!

Thank you to a dear friend, Victoria for stopping by the hospital today:) It was nice to see you and I hope to meet Miss Moriah and Jadon very soon;) We love you, Nelson Family!


  1. Yeeaaaaaahhhhh Callie! We are so proud of you. Glad to hear you got that old nasty tube out of your throat. You are a tough one!! Hang in there, rest, and feel better real soon. Congrats Will & Sarah that things are progressing nicely. We are still praying nightly for baby Callie!!
    Love you guys!!

  2. Way to go girl!!! "We are so proud of how Callie handles everything that must be done for her.The Rebecca S.S. Class at Dinsmore is praying for her and for Mom and Dad that God will give them strength. Keep holding on to your Faith. We believe God has a plan for Callie's life too.I hope her blanket still gives her some comfort. Love & Prayers, Vann

  3. we are ready for you guys to come home we are thinking of you two every day love grammie poppa and ashlee